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*Important* Updates for Genomics and Newborn Screening Stakeholders

The ISDH Genomics and Newborn Screening Newsletter-Vol. 2 Spring 2019 has important updates and information regarding rule changes coming July 1st, 2020 and NBS card updates! 

New Senate Bill 41- This bill was singed into law on March 25th. This will add three new screening conditions for the newborn screening panel. The three conditions added will include: Krabbe disease, Pompe disease and Hurler or MPS-1. This will increase the current 47 conditions tested to contain 50 conditions screened via heelstick screening. Screening will begin in July 1, 2020. For more information about SB 41 please visit:http://iga.in.gov/legislative/2019/bills/senate/41

New NBS card updates - Expected this May or early summer the newborn screening dried blood spot cards will have updates, including four changes to the original NBS card. Please see the Vol. 2 Spring 2019 newsletter for further information on those changes. The NBS laboratory will be distributing these new cards as they send standing orders. The old NBS cards should be used first before using the new cards. 

If you have any questions or additional need of support in implementing this change, please contact us at ISDHNBS@isdh.IN.gov.

 

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Funding Opportunities

REQUEST FOR APPLICANTS- Genomics and Newborn Screening Program
The Indiana State Department of Health Genomics and Newborn Screening Program is requesting applicants to provide Follow-Up Care Services. The grant application process guides are located here:
Maternal and Child Health Funding Opportunities

 

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Infant Mortality and Birth Defects

Neonatal Abstinence Syndrome (NAS)

 

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