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Newborn Screening Results

How to get your newborn's screening results

Families should ask their pediatrician or family doctor for their infant's newborn screening results during their first well-child check visit. If you have already had your first well-child check, call your baby's doctor and ask them to share the results with you. Every physician and midwife in the state of Indiana are allowed access to the online application that houses newborn screening results.

Click here if you are a provider who needs access to NBS results.

If you are a parent needing results who does not have access to a medical provider, see the section below.

Requesting newborn screening results for NCAA activities

Families who need newborn screening results, which include sickle cell results, for NCAA activities should have their physician fax a request for results to the NBS Laboratory. The physician's fax to the NBS Laboratory should include the child's name, date of birth, mother's name, and name of the facility where the child was born. The physician will fax this request to the NBS Laboratory at 317-321-2495. The results are then faxed to the physician within 7-10 business days of the request.

If the child was not born in Indiana, the physician will need to contact the other state's newborn screening program for results. If you do not have access to a physician, see the section below about requesting results without a medical provider.

If you do not have access to a medical provider...

To access your child's newborn screening results without the assistance of a medical provider, please fill out the Genomics and Newborn Screening Access Request Form and email the completed form to the Newborn Screening Program at ISDHNBS@isdh.IN.gov along with a scanned copy of a valid form of identification (see page 2 of the Access Request form for a list of accepted ID's).

NOTE: The process to request results without a provider can take up to 3 weeks as it must go through a legal review process. It is recommend to have a provider request on your behalf when possible as this only takes 1-2 business days for patients born after 2012, and 7-10 business days for patients born before 2012.


Understanding your newborn's screening results

Parents should be told by hospital staff whether their newborn has passed or failed the critical congenital heart disease (CCHD) screen and hearing screen before they leave the hospital. Since the heel stick has to be sent to the Newborn Screening Laboratory and analyzed, it usually takes about 5 to 7 days before results are available. Parents should be given the results of their infant's heel stick screening during their first pediatric well-child appointment.

If your baby passes the...

  • CCHD Screen

Congrats! This means your newborn had normal blood oxygen saturations, which indicates that their risk for CCHD is low.

NOTE: CCHD screening cannot identify every child with CCHD. Most babies who pass the pulse oximetry screen will not have CCHD. However, parents should know the signs of CCHD: blue color to the skin, fingernails or lips, fast breathing and/or poor feeding or weight gain. If you notice any of these signs, please contact your baby's doctor.

  • Hearing Screen

Congrats! This means your newborn did not show signs of hearing loss. No further hearing screening will be needed during the newborn period. Hearing screens will still need to be done periodically throughout childhood to ensure hearing loss has not developed later on. Contact the Early Hearing Detection and Intervention Program with any questions.

  • If the Heel Stick screening results are normal...

Congrats! This means your newborn did not screen positive for any of the 50+ conditions screened through the heel stick! No further screening is needed at this time.

If your baby does NOT pass the...

  • CCHD Screen

If your newborn does not pass their CCHD screen, another CCHD screen will be performed one hour after the first failed screen. If your newborn fails this rescreen as well, an echocardiogram should be performed as soon as possible to rule-out a CCHD. Ideally, the echocardiogram should be performed before you leave the hospital. Visit our Heart Defects page to learn more about specific heart conditions.

  • Hearing Screen

This means your newborn may have hearing loss. Confirmatory testing will be needed to verify that hearing loss is present in your newborn. The hospital staff should refer you to an audiology specialist to have the confirmatory testing done. If you need any assistance with the follow-up process for your child, call the Early Hearing Detection and Intervention (EHDI) Follow-up Coordinator at  317-233-1264 or email at SAllgeier@isdh.in.gov . You may also want to visit the Early Hearing Detection and Intervention Program page for more information.

  • If the Heel Stick screening results are abnormal (presumptive positive)

If the heel stick results are abnormal (presumptive positive) it means your newborn's screen showed signs that they might have a genetic condition. This information will be communicated directly to your baby's primary care provider and the birthing facility staff within 5 days from the time the heel stick was performed.

Before a diagnosis can be made, confirmatory testing will first need to be done. You should be contacted by your newborn's primary care physician or the birthing facility/midwife who performed the screening to set up a repeat heel stick screen or arrange confirmatory testing.


Need Assistance?

Please contact the Genomics and Newborn Screening Program  with any questions or for assistance with requesting newborn screening results.

Genomics and Newborn Screening: 888-815-0006 or email ISDHNBS@isdh.in.gov.

Page last revised 7/20/2022 by JWeaver